thankfully the past week has been better, but leading up this past week has been quite stressful for us. finally, after some feet stomping & pulling the 'big girl' pants on so to say, hayden's neurologist finally ordered a 24 hour EEG--outpatient of course! so monday morning mom & i headed over the mountain to have that applied. mind you it is no easy feat to apply to anyone, but throw in an active, on the autism spectrum little guy then it is more challenging. amazingly, hayden did really well w/ his 'cap' for the 24 hours & early tuesday morning tim & i heading back across the mountain to have it removed---snowy weather & all.
unfortunately, 'the equipment failed'----both tim & i were royally ticked! so or sweet little boy got to wear the cap for another 24 hours!!! tim was so mad....i was ticked! of course, hayden didn't have any of his 'major' seizures while wearing this EEG---but hopefully he was able to send some information to the chip that he was carrying around for those stinking 48 hours.
it is a learning experience....we have to learn to let go....we can not have control over it all! that is so very hard for me, being in the medical field, i know some of the questions to ask & how to pull some strings---that is control.....i am having to let go & let god have that control realizing that i don't have control over how my little man is, how he is going to develop & trust those who have the knowledge in those areas that he needs the help to help hayden.
***********
we are coming up on the 8th shayla day as well. the week leading up to that day 8 years ago is still very clear in my head. we weren't sure if shayla would stay with us or go back to her birthfather, who was fighting us for shayla. we had stayed true to shayla's birthmothers wishes because she wanted shayla with us as did we. as we approach that day each year, i remember just how grateful we are to shayla's birthmother & her devotion to us & shayla.
xoxo, amy
No comments:
Post a Comment