good articles....

When something seem to be bugging me, I just happen to come across particularly good articles that hit the subject on the head.  Just like this article: What to say to Special Needs Parents...it is written by Maria Lin who wrote, 7 Things You Don't Know About A Special Needs Parent.  Both are really good articles. I am reminded every now & then, ok more often than not that the challenges we face are our challenges & other families with special kids have their own battles.
Lately, we are battling the fact....

•  that even though our son is 6, he will be riding in a 'car seat' for many years to come
• that Hayden will need special adaptive seating for eating for years on end or until he can control his body (truck) at the table & we will be feeding our son most of his meals to prevent aspiration
• that we will wrestle with IEP sessions yearly to get the least restrictive education setting for Hayden for years on end
• that one of us is always on Hayden detail for seizure patrol & escape precautions

And it's Friday night...so many changes to the end of the week now that we are older ....I grab time on the treadmill or outside running later in the evening, we eat late (like after 8pm), I do laundry/catch up on mundane chores...I remember the younger years of going out on Friday evenings, movies/ shopping/ eating out... but now our lives really are dictate by how Hayden is acting/behaving, etc.

We have visited the Children's Rehab Hospital several times in past couple months & during our time there I am reminded how blessed we are.  But that doesn't stop the demons of dreaming for normalcy in our life.