This month has not been kind...looking back at just how incredibly sick Hayden was during those first couple of days he was hospitalized makes us realize how blessed we are that his body bounced back so quickly. Hayden is like a ball of fire...he bounced back so quickly that he got sick a-g-a-i-n last weekend...but with much less severity! We are taking all steps possible to be very pro-active when Hayden begins showing signs of respiratory illness from here on out. However, we do not like the way steroids make our all ready hyperactive child even more active...we can't even explain it the amount of energy that Hayden expels...it is mind blogging. And being a fly on the wall is about the only way you could get a glimpse into our world.
Tomorrow's test will be a repeat swallow test. Hayden is a mouth stuffer, who easily chokes on his food, who doesn't like to chew & let me swallow things whole...that being said Hayden's first swallow test showed evidence of aspirating or otherwise parts & pieces of food/drink going into his wind pipe instead of the food pipe only. We are praying that this repeat test will yield the same if not improved results otherwise we will have some serious decisions to make about Hayden's eating future.
Shayla is doing well. I want to explain how having a sibling with special needs affects other children...but as I have said before those words are still growing from within my heart...& I'm letting it take its time to grow. Shayla is maturing & growing up...it is still hard for us to believe that she once fit in the bend of our arm...so small & petite. Middle School is going well; Shayla has learned the ropes & is making much process.
Tim & I are looking forward to a much needed respite weekend thanks to grandparents...a couple of days to get away will be nice.
Happy Leap Year!!
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