We met Hayden's new neurologist this past week. In fact we spent more time at doctor offices this week than we have in a long time. We were grateful that the Hayden's neurologist 'listened' to us & took lots of notes, seemed appreciative of the medication timeline. We learned that this doctor has a 'plan' for Hayden & to treat his epilepsy....we would LOVE to have Hayden seizure free again, just like we did about 2 years ago for 360 days. Only this plan would include a much long time frame....it will just take time & patience---which I don't specialize in, grrr!
We will continue to consider another MRI, the thought from both Hayden's developmental pediatrician & neurologist is to see what the genetics clinic has to say in June. Hayden is slowly regaining most of his gross motor skills, is the proud wearer of other inserts (to help w/ his flat feet) & tolerating medication changes.
Shayla is wrapping up soccer. This has been a good experience for her. We are trying to find a summer camp for her to attend to boost her confidence & level of ability. As well as finding other summer activities to Shayla busy. And thankfully, we all survived this round of SOL testing---thank you Lord!
We are counting down to our vacation as well......NINETEEN days!!! There is a lot to do between now & then but that's ok, it's a light at the end of the tunnel!
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